Mommy’s Escape 6.0

{December 23, 2008}   Autism Night Before Christmas

 Hey all, I just wanted to share this poem with you that I get every Christmas time. It says so much to the outside world about being an autism parent on Christmas and throughout the year.

Autism Night Before Christmas
by Cindy Waeltermann, Autism Link

Twas the Night Before Christmas
And all through the house
The creatures were stirring
Yes, even the mouse

We tried melatonin
And gave a hot bath
But the holiday jitters
They always distract

The children were finally
All nestled in bed
When nightmares of terror
Ran through my OWN head

Did I get the right gift
The right color
And style
Would there be a tantrum
Or even, maybe, a smile?

Our relatives come
But they don’t understand
The pleasure he gets
Just from flapping his hands.

“He needs discipline,” they say
“Just a well-needed smack,
You must learn to parent…”
And on goes the attack

We smile and nod
Because we know deep inside
The argument is moot
Let them all take a side

We know what it’s like
To live with the spectrum
The struggles and triumphs
Achievements, regressions…

But what they don’t know
And what they don’t see
Is the joy that we feel
Over simplicity

He said “hello”
He ate something green!
He told his first lie!
He did not cause a scene!

He peed on the potty
Who cares if he’s ten,
He stopped saying the same thing
Again and again!

Others don’t realize
Just how we can cope
How we bravely hang on
At the end of our rope

But what they don’t see
Is the joy we can’t hide
When our children with autism
Make the tiniest stride

We may look at others
Without the problems we face
With jealousy, hatred
Or even distaste,

But what they don’t know
Nor sometimes do we
Is that children with autism
Bring simplicity.

We don’t get excited
Over expensive things
We jump for joy
With the progress work brings

Children with autism
Try hard every day
That they make us proud
More than words can say.

They work even harder
Than you or I
To achieve something small
To reach a star in the sky

So to those who don’t get it
Or can’t get a clue
Take a walk in my shoes
And I’ll assure you

That even 10 minutes
Into the walk
You’ll look at me
With respect, even shock.

You will realize
What it is I go through
And the next time you judge
I can assure you

That you won’t say a thing
You’ll be quiet and learn,
Like the years that I did
When the tables were turned…….


My poem comes out on Christmas day, and I assure you this one puts it to SHAME!
Thanks for sharing this, Krystal!

Krystal, that is a very touching poem. I hope you all have the best Christmas yet!

Krystal: Thank you. This is helping me understand, and I hope it does the same for others. Merry Christmas, and blessings to you and yours!

That was beautiful, Sunshine. And I’d love to have you guest if you’d like.

That is by far the most touching post I have read. A little teary and I’ll pass it on to my other friends whose children have autism.

Have the Merriest Christmas…and all the best wishes for the New Year!

Mary Anne

halfasgoodasyou says:

What a great post. I hadn’t thought about how tough the holidays can be on autistic kids who are so used to structure… hope you guys have a great holiday though!

Jim @ IPR says:

What a fantastic post. Thank you so much for sharing. Merry Christmas!

Honey, this was beautiful and so touching. I hope you know that I’m in awe of you. I’ve missed you dearly and I’ve got your package ready to go. I’ll send it after the holidays (the post offices are crazy now). I just wanted to wish you a Merry Christmas and I can’t wait to catch up with you. Thanks for your friendship. I’m truly lucky and grateful to count you as a friend. Mwah! Love you!

Lori says:

That is soooo beautiful! It brought tears to my eyes and I just want to give you a hug right now. I cannot even imagine walking in your shoes every day. Bless you and your husband. Bless each one of your precious children. Each one of them is truly special. I am really thankful that I found your blog…it has really blessed me. Merry Christmas to you and your family.

Casdok says:

Love it!
Merry christmas!

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